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eosinophilic leukemia So I'm "Toast"...Or So I'm Hearing? (1 viewing) (1) Guests
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TOPIC: eosinophilic leukemia So I'm "Toast"...Or So I'm Hearing?
#26716
eosinophilic leukemia So I'm "Toast"...Or So I'm Hearing?  
Some people have no tact at all.... This is why I'm here...I need some help. I'm very scared right now hearing this. I'm being told that even with treatment that things are not going to go well for me. That I'm bascially Toast now. This little message was delivered from someone calling themself my friend {hmmm} They were trying to be practical realilistic  and didn't want me to get my hopes up in regards to doing more therapy. Needless to say this friend will be kept at bay for awhile..or maybe forever.
 
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#26717
Kaye301 (Visitor)
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eosinophilic leukemia So I'm "Toast"...Or So I'm Hearing?  
Sorry to hear of all that you are dealing  with this, including your fears, which are quite understandable.  The fact that the cancer was found only in your breast is a very good sign.  The PET scan should shed some light on whether or not there has been any further spread. As far as treatment protocols, as you mentioned, AC is one way to go.  A friend of mine recently had a local recurrence.  She also had had CMF the first time around.  This time, in addition to getting radiation again, she is also receiving AT (Adriamycin and a taxane).  There are several other chemo drugs that are being used as well.  You might also be offered a clinical trial, which may allow you to get some medications that have not yet been approved by the FDA. I am sorry to hear that your friend was not supportive and caused you to have increased worry and fear.  It doesn't sound like she was being practical and realistic; it sounds more like being emotionally 'cruel.'   As far as prognosis, there is really no way to accurately predict the outcome for all cases.  I have a good friend who was dx'd 15 years ago and had 14 positive nodes.  She is still very healthy and busily running around, barely keeping up with a very hectic schedule.Anyway, take care and all the bes
 
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#26718
Tim Jackson (Visitor)
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eosinophilic leukemia So I'm "Toast"...Or So I'm Hearing?  
This is why I'm here...I need some help. I'm very scared right now hearing this. I'm being told that even with treatment that things are not going to go well for me. That I'm bascially Toast now. This little message was delivered from someone calling themself my friend {hmmm} They were trying to be practical realilistic  and didn't want me to get my hopes up in regards to doing more therapy. Needless to say this friend will be kept at bay for awhile..or maybe forever.
 
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#26719
eosinophilic leukemia So I'm "Toast"...Or So I'm Hearing?  
First thanks so much for your reply to my post... Now....Taxanes? What I've read/heard they are pretty hard to get through, and have some pretty debiltating side effects. Trouble with hands and feet/among other things? {severe neuropathy sp?} Long term effects on the body? I've read heart problems with Adria....Does heart problems in ones history cancel this out as an option? {mother/heart attack in 1/01} And I have irritable bowel syndrome {have had this for 26+ years now} So I do have to consider that also.   Are the side effects reeeaally as bad as I've read in relation to these drugs that you mentioned?   Taxanes? You are speaking of Taxol and Taxotere? right? Or are there others out there that come under that heading? How effective are anti-nausea meds with these drugs? I had Kytril/Decadron {with cmf treatments} last time and was never sick one single day....guess those days are gone, huh? Thanks alot for your post... I really do appreicate that you are as honest and open with your replies as you are...{well sometimes anyway} Take care there God bless you for being here for us {me} Annie Ultimately.....we know deeply that the other side of every fear is a freedom. Courage ...is *fear* that has said it's prayers.
 
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#26720
Tim Jackson (Visitor)
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eosinophilic leukemia So I'm "Toast"...Or So I'm Hearing?  
Now....Taxanes? What I've read/heard they are pretty hard to get through, and have some pretty debiltating side effects. Trouble with hands and feet/among other things? {severe neuropathy sp?} Long term effects on the body? I've read heart problems with Adria....Does heart problems in ones history cancel this out as an option? {mother/heart attack in 1/01} And I have irritable bowel syndrome {have had this for 26+ years now} So I do have to consider that also. Are the side effects reeeaally as bad as I've read in relation to these drugs that you mentioned? Taxanes? You are speaking of Taxol and Taxotere? right? Or are there others out there that come under that heading? How effective are anti-nausea meds with these drugs? I had Kytril/Decadron {with cmf treatments} last time and was never sick one single day....guess those days are gone, huh? Thanks alot for your post... I really do appreicate that you are as honest and open with your replies as you are...{well sometimes anyway} Take care there God bless you for being here for us {me} Annie Ultimately.....we know deeply that the other side of every fear is a freedom. Courage ...is *fear* that has said it's prayers.
 
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#26721
Kaye301 (Visitor)
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eosinophilic leukemia So I'm "Toast"...Or So I'm Hearing?  
Annie, as far as Adriamycin and risk of heart problems, I was also very concerned before I started since I was born with a congenital heart problem (yeah, I know, another thing 'wrong' with me
 
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